TY - JOUR
T1 - Health Care Transition in Adolescents and Young Adults With Chronic Kidney Disease
T2 - Focus on the Individual and Family Support Systems
AU - Pruette, Cozumel S.
AU - Ranch, Daniel
AU - Shih, Weiwen Vivian
AU - Ferris, Maria Diaz Gonzalez
N1 - Funding Information:
The authors wish to thank the patients and families for sharing their experiences, as these have shaped their understanding and role in the HCT journey. Financial Disclosures: The authors declare that they have no relevant financial interests.
Publisher Copyright:
© 2022 National Kidney Foundation, Inc.
PY - 2022/5
Y1 - 2022/5
N2 - Health care transition (HCT) from pediatric to adult-focused services is a longitudinal process driven by the collaboration and interactions of adolescent/young adult patients, their families, providers, health care agencies, and environment. Health care providers in both pediatric and adult-focused settings must collaborate, as patients' health self-management skills are acquired in the mid-20s, after they have transferred to adult-focused care. Our manuscript discusses the individual and family support systems as they relate to adolescents and young adults with chronic or end-stage kidney disease. In the individual domain, we discuss demographic/socioeconomic characteristics, disease complexity/course, cognitive capabilities, and self-management/self-advocacy. In the family domain, we discuss family composition/culture factors, family function, parenting style, and family unit factors. We provide a section dedicated to patients with cognitive and developmental disability. Furthermore, we discuss barriers for HCT preparation and offer solutions as well as activities for HCT preparation.
AB - Health care transition (HCT) from pediatric to adult-focused services is a longitudinal process driven by the collaboration and interactions of adolescent/young adult patients, their families, providers, health care agencies, and environment. Health care providers in both pediatric and adult-focused settings must collaborate, as patients' health self-management skills are acquired in the mid-20s, after they have transferred to adult-focused care. Our manuscript discusses the individual and family support systems as they relate to adolescents and young adults with chronic or end-stage kidney disease. In the individual domain, we discuss demographic/socioeconomic characteristics, disease complexity/course, cognitive capabilities, and self-management/self-advocacy. In the family domain, we discuss family composition/culture factors, family function, parenting style, and family unit factors. We provide a section dedicated to patients with cognitive and developmental disability. Furthermore, we discuss barriers for HCT preparation and offer solutions as well as activities for HCT preparation.
KW - Adolescent
KW - Chronic kidney disease
KW - Cognitive or developmental disability
KW - Health care transition
KW - Self-management
UR - http://www.scopus.com/inward/record.url?scp=85137384785&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85137384785&partnerID=8YFLogxK
U2 - 10.1053/j.ackd.2022.02.004
DO - 10.1053/j.ackd.2022.02.004
M3 - Review article
C2 - 36084978
AN - SCOPUS:85137384785
SN - 1548-5595
VL - 29
SP - 318
EP - 326
JO - Advances in Chronic Kidney Disease
JF - Advances in Chronic Kidney Disease
IS - 3
ER -