TY - JOUR
T1 - Empowering newborn screening programs in African countries through establishment of an international collaborative effort
AU - On behalf of the faculty and speakers at the First Pan African Workshop on Newborn Screening, Rabat, Morocco, June 12-14, 2019
AU - Therrell, Bradford L.
AU - Lloyd-Puryear, Michele A.
AU - Ohene-Frempong, Kwaku
AU - Ware, Russell E.
AU - Padilla, Carmencita D.
AU - Ambrose, Emmanuela E.
AU - Barkat, Amina
AU - Ghazal, Hassan
AU - Kiyaga, Charles
AU - Mvalo, Tisungane
AU - Nnodu, Obiageli
AU - Ouldim, Karim
AU - Rahimy, Mohamed Chérif
AU - Santos, Brígida
AU - Tshilolo, Léon
AU - Yusuf, Careema
AU - Zarbalian, Guisou
AU - Watson, Michael S.
N1 - Funding Information:
Meeting faculty and speakers included (alphabetically) Zilfalil Bin Alwi, Malaysia; Emmanuela E. Ambrose, Tanzania; Kofie Anie, United Kingdom; Augustine K. Asubonteng, Ghana; Amina Barkat, Morocco; Natasha Bonhomme, USA; Jackie Boucher; USA; Fenna Builler, Morocco; Layachi Chabraoui, Morocco; Etienne Dembele, Mali; Nouzha Dghoughi, Morocco; Olav Eielsen, Norway; Hassan Ghazal, Morocco; R. Rodney Howell, USA; Sara El Janahi, Morocco; Issam Khneisser, Lebanon; Charles Kiyaga, Uganda; Achraf Laghmich, Morocco; Jill Levy-Fisch, USA; Michele A. Lloyd-Puryear, USA; Fred Lorey, USA; Ana Marcão, Portugal; Gerard Martin, USA; Fred Meindl, USA; Tisungane Mvalo, Malawi; Obiageli E. Nnodu, Nigeria; Kwaku Ohene-Frempong, USA/Ghana; Karim Ouldim, Morocco; Afia Asamoah Owusu, Ghana; Carmencita D. Padilla, Philippines; Mohamed Chérif Rahimy, Benin; Brígida Santos, Angola; Annamarie Saarinen, USA; Nadia El Idrissi Slitine, Morocco; Bradford L. Therrell, Jr., USA; Peter J. Tonellato, USA; Léon Tshilolo, Democratic Republic of Congo; Lisa A. Wandler, USA, Russell E. Ware, USA; Michael S. Watson, USA; Raquel Yahyaoui, Spain; Careema Yusuf, USA; Guisou Zarbalian, USA. Thanks are extended to the following colleagues, deans, and directors that supported the event and significantly contributed to its success: Zakia Sebbane, (Morocco MoH), Abdelhakim Yahyane (Morocco MoH), Mohamed Khalfaoui (CNRST, Rabat), Ahmed Hammouch, (Morocco Ministry of Higher Education and Research) , Abderrahmane Maaroufi (Institut Pasteur Maroc), Mohamed Cherkaoui (Institut Pasteur Maroc), Chakib Nejjari (University Mohamed VI for Health Sciences, Casablanca), Mohamed Rajaoui (National Institute of Health, Rabat), Mohamed Benlemlih (School of Sciences, Fes), Khalid El Bikri (Enset School of Engineering, Rabat), Hamid El Amri (Royal Institute of Genetics, Rabat) , Mohamed El Azami El Idrissi (School of Medicine, Fes), Adil Ibrahimi (School of Medicine, Fes), Abdelkhalek Legssyer (School of Sciences, Oujda), Noureddine Boukhatem (School of Sciences, Oujda), Samir Kaddar (C3M, Brussels), Michele A. Lloyd-Puryear (USA), Russell E. Ware (USA), Bradford L. Therrell, Jr. (USA), Michael S. Watson (USA), R. Rodney Howell (USA), Kwaku Ohene-Frempong (USA/Ghana) Martin Gerard (USA), Clement McDonald (USA). Specials thanks for significant contributions to the meeting organization go to the following colleagues in Morocco: Salsabil Hamdi, Hayat Sedrati, Mohamed Benazzouz, Naima Erreimi, Asmae Tantane, Hicham Sam, Abderrazak Rfaki, Hicham Bekkari, Zineb Mohsine, Abdellah Idrissi Azami, Wajih Rhalem, Mourad Raji, Sofia Sehli, Nihal Habib, Chaimae Samtal, Zineb El Otmani, Manal Chrairi, Ferdaous Idlahcen, Samira Zguiti, Fatiha Haddad, Souad Chaqsar, Sahar El Kasmi and Hanae Belghiti. The primary meeting organizer was the Moroccan Society for Newborn Screening and Handicap Prevention in partnership with: National Center for Scientific and Technological Research, Rabat, Morocco; Population Department, Ministry of Health, Rabat, Morocco; International Society for Neonatal Screening; Pasteur Institute of Morocco, Casablanca; National Institute of Health, Rabat, Morocco; American College of Medical Genetics and Genomics, MD, USA; US National Library of Medicine, MD, USA; Children’s National Medical Center, Washington, DC, USA; Newborn Foundation, USA; Association of Public Health Laboratories, USA; National Newborn Screening and Global Resource Center, USA. Collaborators included: Save Babies Through Screening Foundation, USA; Genetic Alliance, USA; School of Sciences of Oujda; School of Medicine of Fes; School of Sciences of Fes; School of Engineering Enset, Rabat; Association of Moroccan Physicians Abroad (C3M); and Children’s HeartLink, USA.
Publisher Copyright:
© 2020, Springer-Verlag GmbH Germany, part of Springer Nature.
PY - 2020/7/1
Y1 - 2020/7/1
N2 - In an effort to explore new knowledge and to develop meaningful collaborations for improving child health, the First Pan African Workshop on Newborn Screening was convened in June 2019 in Rabat, Morocco. Participants included an informal network of newborn screening stakeholders from across Africa and global experts in newborn screening and sickle cell disease. Over 150 attendees, representing 20 countries, were present including 11 African countries. The agenda focused on newborn screening rationale, techniques, system development, implementation barriers, ongoing research, and collaborations both globally and across Africa. We provide an overview of the workshop and a description of the newborn screening activities in the 11 African countries represented at the workshop, with a focus on sickle cell disease.
AB - In an effort to explore new knowledge and to develop meaningful collaborations for improving child health, the First Pan African Workshop on Newborn Screening was convened in June 2019 in Rabat, Morocco. Participants included an informal network of newborn screening stakeholders from across Africa and global experts in newborn screening and sickle cell disease. Over 150 attendees, representing 20 countries, were present including 11 African countries. The agenda focused on newborn screening rationale, techniques, system development, implementation barriers, ongoing research, and collaborations both globally and across Africa. We provide an overview of the workshop and a description of the newborn screening activities in the 11 African countries represented at the workshop, with a focus on sickle cell disease.
KW - Newborn screening
KW - Pan-African
KW - Public health
KW - Rabat declaration
KW - Sickle cell disease
UR - http://www.scopus.com/inward/record.url?scp=85084836698&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85084836698&partnerID=8YFLogxK
U2 - 10.1007/s12687-020-00463-7
DO - 10.1007/s12687-020-00463-7
M3 - Article
C2 - 32415570
AN - SCOPUS:85084836698
SN - 1868-310X
VL - 11
SP - 253
EP - 268
JO - Journal of Community Genetics
JF - Journal of Community Genetics
IS - 3
ER -