TY - JOUR
T1 - Dementia Caregiver Experiences
T2 - Insights From a Telephone-Based Support Program
AU - Thai, Glory H.
AU - Rivette, Sheran
AU - Sharman, Jo Ann
AU - Epps, Fayron
AU - Masoud, Sara
N1 - Publisher Copyright:
© The Author(s) 2024.
PY - 2024/9
Y1 - 2024/9
N2 - Dementia caregivers face daunting challenges as both the oldest subpopulation of those providing unpaid care and the most at risk of adverse health outcomes as a result of their role, including depression, anxiety, and increased mortality. To better understand the experiences and needs of dementia caregivers, a qualitative content analysis was conducted of secondary data extracted from call logs (N = 569) recorded by a provider-initiated, telephone-based support program. Experiences identified from the call logs were coded, categorized, and ranked to determine the most prevalent dementia caregiving-related experiences. Features of the program, particularly the semi-structured call format and directionality of calls, helped to uniquely capture common experiences of family caregivers and their day-to-day concerns. Findings from this analysis reflect the high prevalence of caregiver mental and emotional health-related concerns. This analysis supports the development of interventions that align with the experiences of dementia caregivers.
AB - Dementia caregivers face daunting challenges as both the oldest subpopulation of those providing unpaid care and the most at risk of adverse health outcomes as a result of their role, including depression, anxiety, and increased mortality. To better understand the experiences and needs of dementia caregivers, a qualitative content analysis was conducted of secondary data extracted from call logs (N = 569) recorded by a provider-initiated, telephone-based support program. Experiences identified from the call logs were coded, categorized, and ranked to determine the most prevalent dementia caregiving-related experiences. Features of the program, particularly the semi-structured call format and directionality of calls, helped to uniquely capture common experiences of family caregivers and their day-to-day concerns. Findings from this analysis reflect the high prevalence of caregiver mental and emotional health-related concerns. This analysis supports the development of interventions that align with the experiences of dementia caregivers.
KW - caregiving
KW - dementia
KW - geriatrics
KW - home- and community-based care and services
KW - long-term services and supports
UR - http://www.scopus.com/inward/record.url?scp=85187152263&partnerID=8YFLogxK
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U2 - 10.1177/07334648241234745
DO - 10.1177/07334648241234745
M3 - Article
C2 - 38459827
AN - SCOPUS:85187152263
SN - 0733-4648
VL - 43
SP - 1241
EP - 1250
JO - Journal of Applied Gerontology
JF - Journal of Applied Gerontology
IS - 9
ER -