Consensus definition of essential, optimal, and suggested components of a pediatric sickle cell disease center

Monica L. Hulbert; Deepa Manwani; Emily Riehm Meier; Ofelia A. Alvarez; R. Clark Brown; Michael U. Callaghan; Andrew D. Campbell; Thomas D. Coates; Melissa J. Frei-Jones; Jane S. Hankins; Matthew M. Heeney; Lewis L. Hsu; Jeffrey D. Lebensburger; Charles T. Quinn; Nirmish Shah; Kim Smith-Whitley; Courtney Thornburg; Julie Kanter

doi:10.1002/pbc.29961

Consensus definition of essential, optimal, and suggested components of a pediatric sickle cell disease center

Monica L. Hulbert, Deepa Manwani, Emily Riehm Meier, Ofelia A. Alvarez, R. Clark Brown, Michael U. Callaghan, Andrew D. Campbell, Thomas D. Coates, Melissa J. Frei-Jones, Jane S. Hankins, Matthew M. Heeney, Lewis L. Hsu, Jeffrey D. Lebensburger, Charles T. Quinn, Nirmish Shah, Kim Smith-Whitley, Courtney Thornburg, Julie Kanter

Producción científica: Article › revisión exhaustiva

14 Citas (Scopus)

Resumen

Sickle cell disease (SCD) requires coordinated, specialized medical care for optimal outcomes. There are no United States (US) guidelines that define a pediatric comprehensive SCD program. We report a modified Delphi consensus-seeking process to determine essential, optimal, and suggested elements of a comprehensive pediatric SCD center. Nineteen pediatric SCD specialists participated from the US. Consensus was predefined as 2/3 agreement on each element's categorization. Twenty-six elements were considered essential (required for guideline-based SCD care), 10 were optimal (recommended but not required), and five were suggested. This work lays the foundation for a formal recognition process of pediatric comprehensive SCD centers.

Idioma original	English (US)
Número de artículo	e29961
Publicación	Pediatric Blood and Cancer
Volumen	70
N.º	1
DOI	https://doi.org/10.1002/pbc.29961
Estado	Published - ene 2023
Publicado de forma externa	Sí

ASJC Scopus subject areas

Hematology
Oncology
Pediatrics, Perinatology, and Child Health

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10.1002/pbc.29961

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Hulbert, M. L., Manwani, D., Meier, E. R., Alvarez, O. A., Brown, R. C., Callaghan, M. U., Campbell, A. D., Coates, T. D., Frei-Jones, M. J., Hankins, J. S., Heeney, M. M., Hsu, L. L., Lebensburger, J. D., Quinn, C. T., Shah, N., Smith-Whitley, K., Thornburg, C., & Kanter, J. (2023). Consensus definition of essential, optimal, and suggested components of a pediatric sickle cell disease center. Pediatric Blood and Cancer, 70(1), Artículo e29961. https://doi.org/10.1002/pbc.29961

Hulbert, ML, Manwani, D, Meier, ER, Alvarez, OA, Brown, RC, Callaghan, MU, Campbell, AD, Coates, TD, Frei-Jones, MJ, Hankins, JS, Heeney, MM, Hsu, LL, Lebensburger, JD, Quinn, CT, Shah, N, Smith-Whitley, K, Thornburg, C & Kanter, J 2023, 'Consensus definition of essential, optimal, and suggested components of a pediatric sickle cell disease center', Pediatric Blood and Cancer, vol. 70, n.º 1, e29961. https://doi.org/10.1002/pbc.29961

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abstract = "Sickle cell disease (SCD) requires coordinated, specialized medical care for optimal outcomes. There are no United States (US) guidelines that define a pediatric comprehensive SCD program. We report a modified Delphi consensus-seeking process to determine essential, optimal, and suggested elements of a comprehensive pediatric SCD center. Nineteen pediatric SCD specialists participated from the US. Consensus was predefined as 2/3 agreement on each element's categorization. Twenty-six elements were considered essential (required for guideline-based SCD care), 10 were optimal (recommended but not required), and five were suggested. This work lays the foundation for a formal recognition process of pediatric comprehensive SCD centers.",

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AU - Brown, R. Clark

AU - Callaghan, Michael U.

AU - Campbell, Andrew D.

AU - Coates, Thomas D.

AU - Frei-Jones, Melissa J.

AU - Hankins, Jane S.

AU - Heeney, Matthew M.

AU - Hsu, Lewis L.

AU - Lebensburger, Jeffrey D.

AU - Quinn, Charles T.

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AU - Kanter, Julie

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AB - Sickle cell disease (SCD) requires coordinated, specialized medical care for optimal outcomes. There are no United States (US) guidelines that define a pediatric comprehensive SCD program. We report a modified Delphi consensus-seeking process to determine essential, optimal, and suggested elements of a comprehensive pediatric SCD center. Nineteen pediatric SCD specialists participated from the US. Consensus was predefined as 2/3 agreement on each element's categorization. Twenty-six elements were considered essential (required for guideline-based SCD care), 10 were optimal (recommended but not required), and five were suggested. This work lays the foundation for a formal recognition process of pediatric comprehensive SCD centers.

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KW - comprehensive center

KW - guideline-based care

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Consensus definition of essential, optimal, and suggested components of a pediatric sickle cell disease center

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