TY - JOUR
T1 - Caring for patients with prenatal alcohol exposure
T2 - A needs assessment
AU - Smith, Vincent C.
AU - Matthias, Phillip
AU - Senturias, Yasmin N.
AU - Turchi, Renee M.
AU - Williams, Janet F.
N1 - Funding Information:
The content of this paper is solely the responsibility of the authors and does not necessarily represent the official views of the Centers for Disease Control and Prevention or the American Academy of Pediatrics. The funding organization played no role in the design and conduct of the study; collection, management, analysis, and interpretation of the data; and preparation, review, or approval of the manuscript; and decision to submit the manuscript for publication. The authors would like to thank Ms. Faiza Wasif, Ms. Rachel Daskalov, and Mr. Josh Benke, AAP Staff for their help, oversight, and provision of the resources and support to this project. The survey by the AAP/CDC FASD Expert Panel is also acknowledged as the basis for this report. This project was conducted with the support of Cooperative Agreement Number 5U58DD000587 from the Centers for Disease Control and Prevention to the American Academy of Pediatrics.
Publisher Copyright:
© 2017 Journal of Population Therapeutics and Clinical Pharmacology. All rights reserved.
PY - 2017
Y1 - 2017
N2 - Background Prenatal alcohol exposure (PAE) is the United States’ most common preventable cause of birth defects and intellectual and developmental disabilities collectively referred to as Fetal Alcohol Spectrum Disorders (FASD). Objective This study was designed to identify gaps in pediatric providers’ knowledge and practices regarding FASD patient identification, diagnosis, management and referral, and to inform needs-based FASD resource development. Methods Pediatric providers (pediatricians, trainees, nurse practitioners) were exposed to survey links embedded in newsletters electronically distributed to the membership of two national professional societies. Survey responses were compiled and analyzed using descriptive statistics. Results Of the 436 respondents, 71% were pediatricians and 88.2% suspected that a child in their practice could have an FASD. Only 29.2% of respondents felt “very comfortable” diagnosing or referring an individual with suspected FASD. Merely 11.5% were satisfied with their current FASD knowledge base and practice behaviour. Most respondents (89.6%) indicated online continuing education courses as preferred learning method and suggested their knowledge and practices would be best enhanced through FASD-specific diagnostic and referral checklists or algorithms, and patient education brochures and fact sheets. Conclusions This study showed that few respondents were satisfied with their current FASD knowledge or practice behaviours. Continuing FASD education, particularly through online courses, was strongly desired. To maximize FASD recognition and optimize care for patients with FASDs, pediatric care providers must ensure that their FASD knowledge base, practice skills and provision of medical home care remain current. Caring for Patients with Prenatal Alcohol Exposure
AB - Background Prenatal alcohol exposure (PAE) is the United States’ most common preventable cause of birth defects and intellectual and developmental disabilities collectively referred to as Fetal Alcohol Spectrum Disorders (FASD). Objective This study was designed to identify gaps in pediatric providers’ knowledge and practices regarding FASD patient identification, diagnosis, management and referral, and to inform needs-based FASD resource development. Methods Pediatric providers (pediatricians, trainees, nurse practitioners) were exposed to survey links embedded in newsletters electronically distributed to the membership of two national professional societies. Survey responses were compiled and analyzed using descriptive statistics. Results Of the 436 respondents, 71% were pediatricians and 88.2% suspected that a child in their practice could have an FASD. Only 29.2% of respondents felt “very comfortable” diagnosing or referring an individual with suspected FASD. Merely 11.5% were satisfied with their current FASD knowledge base and practice behaviour. Most respondents (89.6%) indicated online continuing education courses as preferred learning method and suggested their knowledge and practices would be best enhanced through FASD-specific diagnostic and referral checklists or algorithms, and patient education brochures and fact sheets. Conclusions This study showed that few respondents were satisfied with their current FASD knowledge or practice behaviours. Continuing FASD education, particularly through online courses, was strongly desired. To maximize FASD recognition and optimize care for patients with FASDs, pediatric care providers must ensure that their FASD knowledge base, practice skills and provision of medical home care remain current. Caring for Patients with Prenatal Alcohol Exposure
KW - Fetal alcohol spectrum disorder
KW - Fetal alcohol syndrome
KW - Needs assessment
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U2 - 10.22374/17106222.24.1.4
DO - 10.22374/17106222.24.1.4
M3 - Article
C2 - 28186713
AN - SCOPUS:85011343876
SN - 1198-581X
VL - 24
SP - e25-e38
JO - Canadian Journal of Clinical Pharmacology
JF - Canadian Journal of Clinical Pharmacology
IS - 1
ER -