@article{18a3055e8d2541a287a4a7e7f8d53006,
title = "“A Different Way to Survive”: The Experiences of Family Caregivers of Persons Living With Dementia During the COVID-19 Pandemic",
abstract = "Family caregivers of persons living with dementia often experience challenges to their health and quality of life related to their caregiving role. The COVID-19 pandemic added substantially to the responsibilities of family caregivers, potentially putting them at greater risk of poor health outcomes and impeded quality of life. To better understand the impact of the pandemic on the experiences of family caregivers, a multimethods study was conducted. Family caregivers of persons living with dementia were invited to complete a cross-sectional survey and a subset of survey respondents were invited to participate in focus groups for added insight. A total of 161 caregivers responded to the survey and 30 participated in the focus groups. Qualitative data from focus groups were used to elucidate deeper insight into quantitative findings from the survey. Findings reflect that the pandemic affected family caregiver health and wellness, access of care and resources, identity, and resilience.",
keywords = "COVID-19, dementia, family caregiving",
author = "Sara Masoud and Glassner, {Ashlie A.} and Mayra Mendoza and Shanae Rhodes and White, {Carole L.}",
note = "Funding Information: The authors would like to express our deepest appreciation of the family caregivers who participated in this study and for the members of the Stakeholder Advisory Council who dedicated their time, energy, and valuable perspectives to make this project successful. We are grateful to have received funding and support from the Patient Centered Outcomes Research Institute (PCORI) for our efforts. Funding Information: The authors would like to express our deepest appreciation of the family caregivers who participated in this study and for the members of the Stakeholder Advisory Council who dedicated their time, energy, and valuable perspectives to make this project successful. We are grateful to have received funding and support from the Patient Centered Outcomes Research Institute (PCORI) for our efforts. The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: Research reported in this publication was funded through a Patient-Centered Outcomes Research Institute (PCORI) Engagement Award (10725-UTHSC) and COVID-19-Related Project Enhancement. The statements in this publication are solely the responsibility of the authors and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute (PCORI), its Board of Governors or Methodology Committee.{"} Publisher Copyright: {\textcopyright} The Author(s) 2022.",
year = "2022",
month = aug,
doi = "10.1177/10748407221111079",
language = "English (US)",
volume = "28",
pages = "243--257",
journal = "Journal of Family Nursing",
issn = "1074-8407",
publisher = "SAGE Publications Inc.",
number = "3",
}