TY - JOUR
T1 - Typology of quality of life experiences among persons living with HIV
AU - Huba, G. J.
AU - Melchior, Lisa A.
AU - Panter, A. T.
AU - Brown, Vivian B.
AU - Cherin, David A.
AU - Gallagher, Tracey
AU - German, Victor F.
AU - Jean-Louis, Eustache
AU - Larson, Trudy A.
AU - Marconi, Katherine
AU - McDonald, Sandra S.
AU - Meredith, Karen
AU - Reis, Peter
AU - Richardson-Nassif, Karen
AU - Smereck, Geoffrey A.D.
AU - Steinberg, Judith
N1 - Funding Information:
This study was supported in part by Health Resources and Services Administration (HRSA), HIV/AIDS Bureau (HAB), Special Projects of National Significance (SPNS) Grant Number 5 U90 HA 00030-05 for the work of the Evaluation and Dissemination Center and by grants to the individual projects. This article’s contents are solely the responsibility of the authors and do not necessarily represent the official view of the funding agency.
PY - 2000/12/23
Y1 - 2000/12/23
N2 - This article develops a typology of 2,038 participants in 13 innovative HIV/AIDS treatment model service demonstration projects targeted to traditionally underserved populations. The typology is based on self-reported health-related quality of life levels. Eight clusters were identified that classify HIV/AIDS patients based on theirreported health-related quality of life. Participants were clustered based on their overall levels of quality of life, as well as by deficits in specific areas of functioning such as energy level, physical impairment, and role impairment. However, factor analysis suggests that health-related quality of life as perceived by the HIV-positive participants is best represented as a single underlying dimension and an ordering of the types shows that they are consistently related, in the same order, to several criterion measures of impairment. The results suggest that a general categorization of patients with HIV in terms of quality of life is more meaningful than an assessment of the relative areas of impairment. Since the impairment ratings were also self-reported, analyses relating quality of life clusters to actual symptom levels and healthcare utilization are needed. Implications for the assessment of health-related quality of life and the evaluation of service delivery programs for persons living with HIV are discussed.
AB - This article develops a typology of 2,038 participants in 13 innovative HIV/AIDS treatment model service demonstration projects targeted to traditionally underserved populations. The typology is based on self-reported health-related quality of life levels. Eight clusters were identified that classify HIV/AIDS patients based on theirreported health-related quality of life. Participants were clustered based on their overall levels of quality of life, as well as by deficits in specific areas of functioning such as energy level, physical impairment, and role impairment. However, factor analysis suggests that health-related quality of life as perceived by the HIV-positive participants is best represented as a single underlying dimension and an ordering of the types shows that they are consistently related, in the same order, to several criterion measures of impairment. The results suggest that a general categorization of patients with HIV in terms of quality of life is more meaningful than an assessment of the relative areas of impairment. Since the impairment ratings were also self-reported, analyses relating quality of life clusters to actual symptom levels and healthcare utilization are needed. Implications for the assessment of health-related quality of life and the evaluation of service delivery programs for persons living with HIV are discussed.
KW - Cluster analysis
KW - HIV/AIDS
KW - Health services research
KW - Quality of life
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U2 - 10.1300/J027v18n03_02
DO - 10.1300/J027v18n03_02
M3 - Article
C2 - 11211319
AN - SCOPUS:0034568360
SN - 0162-1424
VL - 18
SP - 23
EP - 41
JO - Home Health Care Services Quarterly
JF - Home Health Care Services Quarterly
IS - 3
ER -