Prevention of congenital disorders and care of affected children: A consensus statement

Gary L. Darmstadt, Christopher P. Howson, Gijs Walraven, Robert W. Armstrong, Hannah K. Blencowe, Arnold L. Christianson, Alastair Kent, Helen Malherbe, Jeffrey C. Murray, Carmencita D. Padilla, Salimah R. Walani, Kjersti Aagaard, Neelam Aggarwal, Sujeewa Amarasena, Linda Barlow-Mosha, Muneerah Amin Vastani, Eric Aswani Nyaligu, Tayo Awoyale, Lieven Bauwens, Martha CarvalhoHarish Chellani, George Cosmas, Sergio D'Agostino, Matthew W. Darlison, Safiyya Devraj, Rym El Rafei, Munda Elias, Martina Ens-Dokkum, Chinyere V. Ezeaka, Itziar Familiar-Lopez, Lord Jephthah Joojo Gowans, Abby Grant, Shobhna Gupta, Petri Huhtinen, Fajolu Iretiola, Kapila Jayaratne, Alix Joseph, Vijaya Kancherla, Ajay Khera, Jill Levy-Fisch, Desheng Liang, Michele Lloyd-Puryear, William Macharia, Luis Madeira, Jerusalem Makotore Muburirwa, Leonard James Malasa, Paola Manduca, Janet Manoni, Shaba Michael Kilasi, Franscesca Miquel-Verges, Shaffiq Mohamed, Lillian Mtei, Edina Mullumba, Beata Mushema, Rachel Musoke, Wendy Nembhard, Margaret Nguhi, Irmgard Nippert, Esther Nyambura Njoroge, John Nelson Obondo, Comrade Lawal Aiyedun Olubunmi, Rebecca Opetsi Alitsi, Helena Pachón, Ysbrand Poortman, Charles Powell, Lynne Powell, Neena Raina, K. Rajarajeswari, Nagy Sabet, Henry Safori, Rogath Saika Kishimba, Abdulhakim Salim Bayakub, Hilal Salum, Florence Salvatory, Switbert Sambala, Maria Teresa Vieira Sanseverino, Vivian Saria Frank, Iran Sayed-Raeisy, Neema Seya, Hamisi Kimaro Shabani, Alice Shalua, Bradford Therrell, John Tole, Christine Tusiime, W. K.N. Weliwagamage, D. L. Woods, Lingqian Wu

Research output: Contribution to journalReview article

21 Scopus citations

Abstract

As the Sustainable Development Goals are adopted by United Nations member states, children with congenital disorders remain left behind in policies, programs, research, and funding. Although this finding was recognized by the creation and endorsement of the 63rd World Health Assembly Resolution in 2010 calling on United Nations member states to strengthen prevention of congenital disorders and the improvement of care of those affected, there has been little to no action since then. The Sustainable Development Goals call for the global health and development community to focus first and foremost on the most vulnerable and those left behind in the Millennium Development Goal era. To maximize the opportunity for every woman and couple to have a healthy child and to reduce the mortality and severe disability associated with potentially avoidable congenital disorders and their consequences for the children affected, their families and communities, and national health care systems, we propose priority measures that should be taken urgently to address this issue.

Original languageEnglish (US)
Pages (from-to)790-793
Number of pages4
JournalJAMA Pediatrics
Volume170
Issue number8
DOIs
StatePublished - Aug 2016
Externally publishedYes

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health

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