Perceptions of Mexican American clients receiving genetic services in South Texas

María Luisa Urdaneta, Judith Livingston, Maricela Aguilar, Sandy Suther, Vicky Enciso, Celia I. Kaye

Research output: Contribution to journalArticlepeer-review

4 Scopus citations

Abstract

Objectives: The objectives of this study were to assess the perceptions among medically indigent Mexican American clients in South Texas receiving genetic services, and the effects of these perceptions on the utilization of genetic services. Methods: Using a qualitative ethnographic approach, 16 caretakers of children with genetic conditions and 7 prenatal clients were interviewed. Interview data were analyzed using the NUD*IST 4 computer program. Results: Clients reported challenges with understanding and utilizing genetic services due to language and communication barriers, poverty, cultural differences, and system issues. Conclusion: Client perceptions of genetic services were influenced by experiences with other biomedical providers and traditional healers, and by anxieties precipitated by unfamiliar concepts and approaches to medical care. Recommendations are made to improve provision of genetic services.

Original languageEnglish (US)
Pages (from-to)239-248
Number of pages10
JournalCommunity Genetics
Volume5
Issue number4
DOIs
StatePublished - Dec 12 2002

Keywords

  • Bilingual communication
  • Biomedicine
  • Culture
  • Curanderismo
  • Genetic disorders
  • Genetic services
  • Mexican Americans
  • Personalismo
  • Spirituality
  • Traditional folk healers

ASJC Scopus subject areas

  • Genetics(clinical)

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