Pelvic organ prolapse: A disease of silence and shame

Gena C. Dunivan, Jennifer T. Anger, Alexandriah Alas, Cecilia Wieslander, Claudia Sevilla, Stephanie Chu, Sally Maliski, Biatris Barrera, Karyn Eiber, Rebecca G. Rogers

Research output: Contribution to journalArticlepeer-review

20 Scopus citations

Abstract

Objectives: The objectives of this study are to better understand women's experience with pelvic organ prolapse (POP) and to compare this experience between English-speaking and Spanish-speaking women. Methods: Women with POP were recruited from female urology and urogynecology clinics. Eight focus groups of 6 to 8 women each were assembledV4 groups in English and 4 in Spanish. A trained bilingual moderator conducted the focus groups. Topics addressed patients' perceptions, their knowledge and experience with POP symptoms, diagnostic evaluation, physician interactions, and treatments. Results: Both English-speaking and Spanish-speaking women expressed the same preliminary themesVlack of knowledge regarding the prevalence of POP, feelings of shame regarding their condition, difficulty in talking with others, fear related to symptoms, and emotional stress from coping with POP. In addition, Spanish-speaking women included fear related to surgery and communication concerns regarding the use of interpreters. Two overarching concepts emergedVfirst, a lack of knowledge, which resulted in shame and fear and second, public awareness regarding POP is needed. From the Spanish speaking, an additional concept was the need to address language barriers and the use of interpreters. Conclusions: Both English-speaking and Spanish-speaking women felt ashamed of their POP and were uncomfortable speaking with anyone about it, including physicians. Educating women on the meaning of POP, symptoms, and available treatments may improve patients' ability to discuss their disorder and seek medical advice; for Spanish-speaking women, access to translators for efficient communication is needed.

Original languageEnglish (US)
Pages (from-to)322-327
Number of pages6
JournalFemale Pelvic Medicine and Reconstructive Surgery
Volume20
Issue number6
DOIs
StatePublished - 2014
Externally publishedYes

Keywords

  • Patient perceptions
  • Pelvic organ prolapse
  • Shame
  • Spanish speakers
  • Symptoms

ASJC Scopus subject areas

  • Surgery
  • Obstetrics and Gynecology
  • Urology

Fingerprint Dive into the research topics of 'Pelvic organ prolapse: A disease of silence and shame'. Together they form a unique fingerprint.

Cite this