TY - JOUR
T1 - Nothing About Us Without Us
T2 - Involving Youth Living With HIV in a Virtual Advisory Board
AU - Chidester, Autumn B.
AU - Johnson, Catherine J.
AU - Lin, Hueylie
AU - Viera Corral, Ruby
AU - Kools, Susan
AU - Ingersoll, Karen S.
AU - Dillingham, Rebecca A.
AU - Nijhawan, Ank E.
AU - Taranova, Anna G.
AU - Taylor, Barbara S.
N1 - Publisher Copyright:
© 2023 Society for Adolescent Health and Medicine
PY - 2023/12
Y1 - 2023/12
N2 - Purpose: We adapted a traditional community advisory board to the needs of youth living with HIV (YLWH), resulting in a virtual, asynchronous, and anonymous youth advisory board (YAB). The YAB's evolution fostered participation during the adaptation of an HIV care mobile health application. Methods: YAB members, comprised of YLWH in South Texas, engaged in the mobile application's formative evaluation, adaptation, and pilot implementation. We collected feedback via surveys and interviews, analyzed and integrated responses, tracked participation and YAB adaptations, and performed content analysis. Results: Driven by feedback, the YAB evolved from in-person group meetings to the current iteration. We administered five surveys, and YAB members provided feedback on communication preferences; mobile app elements; privacy and confidentiality; and virtual support groups. Discussion: Our adaptive process highlights three primary drivers of innovation: COVID-19 risk reduction, asynchrony, anonymity. Our success in maintaining YAB engagement suggests the adapted model could be employed to support youth input in other contexts.
AB - Purpose: We adapted a traditional community advisory board to the needs of youth living with HIV (YLWH), resulting in a virtual, asynchronous, and anonymous youth advisory board (YAB). The YAB's evolution fostered participation during the adaptation of an HIV care mobile health application. Methods: YAB members, comprised of YLWH in South Texas, engaged in the mobile application's formative evaluation, adaptation, and pilot implementation. We collected feedback via surveys and interviews, analyzed and integrated responses, tracked participation and YAB adaptations, and performed content analysis. Results: Driven by feedback, the YAB evolved from in-person group meetings to the current iteration. We administered five surveys, and YAB members provided feedback on communication preferences; mobile app elements; privacy and confidentiality; and virtual support groups. Discussion: Our adaptive process highlights three primary drivers of innovation: COVID-19 risk reduction, asynchrony, anonymity. Our success in maintaining YAB engagement suggests the adapted model could be employed to support youth input in other contexts.
KW - Community advisory board
KW - Community engagement
KW - HIV
KW - Intervention development
KW - Youth advisory board
KW - Youth living with HIV
KW - mHealth
UR - http://www.scopus.com/inward/record.url?scp=85170268441&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85170268441&partnerID=8YFLogxK
U2 - 10.1016/j.jadohealth.2023.06.028
DO - 10.1016/j.jadohealth.2023.06.028
M3 - Article
C2 - 37665305
AN - SCOPUS:85170268441
SN - 1054-139X
VL - 73
SP - 1158
EP - 1161
JO - Journal of Adolescent Health
JF - Journal of Adolescent Health
IS - 6
ER -