Abstract
The impact of neurological disorders on the lives of patients is often far more complex than what is measured in routine examination. Measurement of this impact can be challenging owing to a lack of brief, psychometrically sound and generally accepted instruments. Two NIH-funded initiatives are developing assessment tools, in English and Spanish, which address these issues, and should prove useful to the study and treatment of epilepsy and other neurological conditions. The first, Neuro-QOL, has created a set of health-related quality of life measures that are applicable for people with common neurological disorders. The second, the NIH Toolbox for the Assessment of Neurological and Behavioral Function, is assembling measures of cognitive, emotional, motor and sensory health and function that can be used across all ages, from 3 to 85 years. This article describes both the projects and their potential value to epilepsy treatment and research.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 533-540 |
| Number of pages | 8 |
| Journal | Therapy |
| Volume | 7 |
| Issue number | 5 |
| DOIs | |
| State | Published - Sep 2010 |
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Keywords
- behavioral function
- epilepsy
- health-related quality of life
- measurement
- neurological function
- patient reported outcomes
- quality of life
ASJC Scopus subject areas
- Pharmacology (medical)
- Medicine(all)
Cite this
Neuro-QOL and the NIH toolbox : Implications for epilepsy. / Nowinski, Cindy J.; Victorson, David; Cavazos, Jose E; Gershon, Richard; Cella, David.
In: Therapy, Vol. 7, No. 5, 09.2010, p. 533-540.Research output: Contribution to journal › Article
}
TY - JOUR
T1 - Neuro-QOL and the NIH toolbox
T2 - Implications for epilepsy
AU - Nowinski, Cindy J.
AU - Victorson, David
AU - Cavazos, Jose E
AU - Gershon, Richard
AU - Cella, David
PY - 2010/9
Y1 - 2010/9
N2 - The impact of neurological disorders on the lives of patients is often far more complex than what is measured in routine examination. Measurement of this impact can be challenging owing to a lack of brief, psychometrically sound and generally accepted instruments. Two NIH-funded initiatives are developing assessment tools, in English and Spanish, which address these issues, and should prove useful to the study and treatment of epilepsy and other neurological conditions. The first, Neuro-QOL, has created a set of health-related quality of life measures that are applicable for people with common neurological disorders. The second, the NIH Toolbox for the Assessment of Neurological and Behavioral Function, is assembling measures of cognitive, emotional, motor and sensory health and function that can be used across all ages, from 3 to 85 years. This article describes both the projects and their potential value to epilepsy treatment and research.
AB - The impact of neurological disorders on the lives of patients is often far more complex than what is measured in routine examination. Measurement of this impact can be challenging owing to a lack of brief, psychometrically sound and generally accepted instruments. Two NIH-funded initiatives are developing assessment tools, in English and Spanish, which address these issues, and should prove useful to the study and treatment of epilepsy and other neurological conditions. The first, Neuro-QOL, has created a set of health-related quality of life measures that are applicable for people with common neurological disorders. The second, the NIH Toolbox for the Assessment of Neurological and Behavioral Function, is assembling measures of cognitive, emotional, motor and sensory health and function that can be used across all ages, from 3 to 85 years. This article describes both the projects and their potential value to epilepsy treatment and research.
KW - behavioral function
KW - epilepsy
KW - health-related quality of life
KW - measurement
KW - neurological function
KW - patient reported outcomes
KW - quality of life
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U2 - 10.2217/thy.10.55
DO - 10.2217/thy.10.55
M3 - Article
VL - 7
SP - 533
EP - 540
JO - Therapy
JF - Therapy
SN - 2044-9038
IS - 5
ER -