TY - JOUR
T1 - Neuro-QOL and the NIH toolbox
T2 - Implications for epilepsy
AU - Nowinski, Cindy J.
AU - Victorson, David
AU - Cavazos, Jose E.
AU - Gershon, Richard
AU - Cella, David
N1 - Copyright:
Copyright 2010 Elsevier B.V., All rights reserved.
PY - 2010/9
Y1 - 2010/9
N2 - The impact of neurological disorders on the lives of patients is often far more complex than what is measured in routine examination. Measurement of this impact can be challenging owing to a lack of brief, psychometrically sound and generally accepted instruments. Two NIH-funded initiatives are developing assessment tools, in English and Spanish, which address these issues, and should prove useful to the study and treatment of epilepsy and other neurological conditions. The first, Neuro-QOL, has created a set of health-related quality of life measures that are applicable for people with common neurological disorders. The second, the NIH Toolbox for the Assessment of Neurological and Behavioral Function, is assembling measures of cognitive, emotional, motor and sensory health and function that can be used across all ages, from 3 to 85 years. This article describes both the projects and their potential value to epilepsy treatment and research.
AB - The impact of neurological disorders on the lives of patients is often far more complex than what is measured in routine examination. Measurement of this impact can be challenging owing to a lack of brief, psychometrically sound and generally accepted instruments. Two NIH-funded initiatives are developing assessment tools, in English and Spanish, which address these issues, and should prove useful to the study and treatment of epilepsy and other neurological conditions. The first, Neuro-QOL, has created a set of health-related quality of life measures that are applicable for people with common neurological disorders. The second, the NIH Toolbox for the Assessment of Neurological and Behavioral Function, is assembling measures of cognitive, emotional, motor and sensory health and function that can be used across all ages, from 3 to 85 years. This article describes both the projects and their potential value to epilepsy treatment and research.
KW - behavioral function
KW - epilepsy
KW - health-related quality of life
KW - measurement
KW - neurological function
KW - patient reported outcomes
KW - quality of life
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U2 - 10.2217/thy.10.55
DO - 10.2217/thy.10.55
M3 - Review article
AN - SCOPUS:77957148420
VL - 7
SP - 533
EP - 540
JO - Therapy
JF - Therapy
SN - 1475-0708
IS - 5
ER -