Increasing minority research participation through collaboration with community outpatient clinics: The STEP-BD Community Partners Experience

Jane N. Kogan, Mark S. Bauer, Ellen B. Dennehy, David J. Miklowitz, Jodi M. Gonzalez, Peter M. Thompson, Gary S. Sachs

Research output: Contribution to journalArticle

9 Citations (Scopus)

Abstract

Background: Minority populations have been under-represented in mental health research studies. The systematic treatment enhancement program for bipolar disorder developed the Community Partners Program (CPP) to address this issue in a large, prospective treatment study of persons with bipolar disorder. Purpose: The primary goal of CPP was to develop a community-based infrastructure for studying bipolar disorder that would enhance the ethnic/racial and socioeconomic diversity of participants. Methods: Selected academic sites partnered with local clinics (n = 6 partnerships in five cities). This report describes the conceptualization, implementation, and qualitative evaluation of CPP, as well as quantitative analysis of clinical and sociodemographic differences between the samples recruited at academic versus community sites. Results: Quantitative analysis of the 155 participants from the six partnerships revealed enrollment of 45% from minority populations (vs. 15% in academic sites). Significant sociodemographic differences were evident not only between academic and community sites, but within minority and non-minority groups across site types. Notably, clinical differences were not evident between participants from academic and community sites. Review of qualitative data suggests that certain factors around implementation of research protocols may enhance community participation. Conclusions: Moving research recruitment and participation into community sites was more successful in increasing minority enrollment than efforts to attract such individuals to academic sites. Recommendations for creating and maintaining academic/community partnerships are given. Limitations: Several important variables were not considered including mood severity, hospitalization, or treatment differences. Minority participants were grouped by combining African American and Hispanics, which may have obscured subgroup differences. A derivation of standard qualitative methods was used in this study.

Original languageEnglish (US)
Pages (from-to)344-354
Number of pages11
JournalClinical Trials
Volume6
Issue number4
DOIs
StatePublished - 2009

Fingerprint

Ambulatory Care Facilities
Research
Bipolar Disorder
Hispanic Americans
African Americans
Population
Mental Health
Hospitalization
Therapeutics
Prospective Studies

ASJC Scopus subject areas

  • Medicine(all)
  • Pharmacology

Cite this

Kogan, J. N., Bauer, M. S., Dennehy, E. B., Miklowitz, D. J., Gonzalez, J. M., Thompson, P. M., & Sachs, G. S. (2009). Increasing minority research participation through collaboration with community outpatient clinics: The STEP-BD Community Partners Experience. Clinical Trials, 6(4), 344-354. https://doi.org/10.1177/1740774509338427

Increasing minority research participation through collaboration with community outpatient clinics : The STEP-BD Community Partners Experience. / Kogan, Jane N.; Bauer, Mark S.; Dennehy, Ellen B.; Miklowitz, David J.; Gonzalez, Jodi M.; Thompson, Peter M.; Sachs, Gary S.

In: Clinical Trials, Vol. 6, No. 4, 2009, p. 344-354.

Research output: Contribution to journalArticle

Kogan, Jane N. ; Bauer, Mark S. ; Dennehy, Ellen B. ; Miklowitz, David J. ; Gonzalez, Jodi M. ; Thompson, Peter M. ; Sachs, Gary S. / Increasing minority research participation through collaboration with community outpatient clinics : The STEP-BD Community Partners Experience. In: Clinical Trials. 2009 ; Vol. 6, No. 4. pp. 344-354.
@article{f47a86f936a8475399b29c8b20bf08dd,
title = "Increasing minority research participation through collaboration with community outpatient clinics: The STEP-BD Community Partners Experience",
abstract = "Background: Minority populations have been under-represented in mental health research studies. The systematic treatment enhancement program for bipolar disorder developed the Community Partners Program (CPP) to address this issue in a large, prospective treatment study of persons with bipolar disorder. Purpose: The primary goal of CPP was to develop a community-based infrastructure for studying bipolar disorder that would enhance the ethnic/racial and socioeconomic diversity of participants. Methods: Selected academic sites partnered with local clinics (n = 6 partnerships in five cities). This report describes the conceptualization, implementation, and qualitative evaluation of CPP, as well as quantitative analysis of clinical and sociodemographic differences between the samples recruited at academic versus community sites. Results: Quantitative analysis of the 155 participants from the six partnerships revealed enrollment of 45{\%} from minority populations (vs. 15{\%} in academic sites). Significant sociodemographic differences were evident not only between academic and community sites, but within minority and non-minority groups across site types. Notably, clinical differences were not evident between participants from academic and community sites. Review of qualitative data suggests that certain factors around implementation of research protocols may enhance community participation. Conclusions: Moving research recruitment and participation into community sites was more successful in increasing minority enrollment than efforts to attract such individuals to academic sites. Recommendations for creating and maintaining academic/community partnerships are given. Limitations: Several important variables were not considered including mood severity, hospitalization, or treatment differences. Minority participants were grouped by combining African American and Hispanics, which may have obscured subgroup differences. A derivation of standard qualitative methods was used in this study.",
author = "Kogan, {Jane N.} and Bauer, {Mark S.} and Dennehy, {Ellen B.} and Miklowitz, {David J.} and Gonzalez, {Jodi M.} and Thompson, {Peter M.} and Sachs, {Gary S.}",
year = "2009",
doi = "10.1177/1740774509338427",
language = "English (US)",
volume = "6",
pages = "344--354",
journal = "Clinical Trials",
issn = "1740-7745",
publisher = "SAGE Publications Ltd",
number = "4",

}

TY - JOUR

T1 - Increasing minority research participation through collaboration with community outpatient clinics

T2 - The STEP-BD Community Partners Experience

AU - Kogan, Jane N.

AU - Bauer, Mark S.

AU - Dennehy, Ellen B.

AU - Miklowitz, David J.

AU - Gonzalez, Jodi M.

AU - Thompson, Peter M.

AU - Sachs, Gary S.

PY - 2009

Y1 - 2009

N2 - Background: Minority populations have been under-represented in mental health research studies. The systematic treatment enhancement program for bipolar disorder developed the Community Partners Program (CPP) to address this issue in a large, prospective treatment study of persons with bipolar disorder. Purpose: The primary goal of CPP was to develop a community-based infrastructure for studying bipolar disorder that would enhance the ethnic/racial and socioeconomic diversity of participants. Methods: Selected academic sites partnered with local clinics (n = 6 partnerships in five cities). This report describes the conceptualization, implementation, and qualitative evaluation of CPP, as well as quantitative analysis of clinical and sociodemographic differences between the samples recruited at academic versus community sites. Results: Quantitative analysis of the 155 participants from the six partnerships revealed enrollment of 45% from minority populations (vs. 15% in academic sites). Significant sociodemographic differences were evident not only between academic and community sites, but within minority and non-minority groups across site types. Notably, clinical differences were not evident between participants from academic and community sites. Review of qualitative data suggests that certain factors around implementation of research protocols may enhance community participation. Conclusions: Moving research recruitment and participation into community sites was more successful in increasing minority enrollment than efforts to attract such individuals to academic sites. Recommendations for creating and maintaining academic/community partnerships are given. Limitations: Several important variables were not considered including mood severity, hospitalization, or treatment differences. Minority participants were grouped by combining African American and Hispanics, which may have obscured subgroup differences. A derivation of standard qualitative methods was used in this study.

AB - Background: Minority populations have been under-represented in mental health research studies. The systematic treatment enhancement program for bipolar disorder developed the Community Partners Program (CPP) to address this issue in a large, prospective treatment study of persons with bipolar disorder. Purpose: The primary goal of CPP was to develop a community-based infrastructure for studying bipolar disorder that would enhance the ethnic/racial and socioeconomic diversity of participants. Methods: Selected academic sites partnered with local clinics (n = 6 partnerships in five cities). This report describes the conceptualization, implementation, and qualitative evaluation of CPP, as well as quantitative analysis of clinical and sociodemographic differences between the samples recruited at academic versus community sites. Results: Quantitative analysis of the 155 participants from the six partnerships revealed enrollment of 45% from minority populations (vs. 15% in academic sites). Significant sociodemographic differences were evident not only between academic and community sites, but within minority and non-minority groups across site types. Notably, clinical differences were not evident between participants from academic and community sites. Review of qualitative data suggests that certain factors around implementation of research protocols may enhance community participation. Conclusions: Moving research recruitment and participation into community sites was more successful in increasing minority enrollment than efforts to attract such individuals to academic sites. Recommendations for creating and maintaining academic/community partnerships are given. Limitations: Several important variables were not considered including mood severity, hospitalization, or treatment differences. Minority participants were grouped by combining African American and Hispanics, which may have obscured subgroup differences. A derivation of standard qualitative methods was used in this study.

UR - http://www.scopus.com/inward/record.url?scp=70449698160&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=70449698160&partnerID=8YFLogxK

U2 - 10.1177/1740774509338427

DO - 10.1177/1740774509338427

M3 - Article

C2 - 19587069

AN - SCOPUS:70449698160

VL - 6

SP - 344

EP - 354

JO - Clinical Trials

JF - Clinical Trials

SN - 1740-7745

IS - 4

ER -