Improving methods for measuring quality of care: A patient-centered approach in chronic disease

Barbara G. Bokhour, Mary Jo Pugh, Jaya K. Rao, Ruzan Avetisyan, Dan R. Berlowitz, Lewis E. Kazis

Research output: Contribution to journalArticlepeer-review

22 Scopus citations


As health care systems seek to provide patient-centered care as a cornerstone of quality, how to measure this aspect of quality has become a concern. Previous development of quality indicators for treating individual chronic disease has rarely included patient perspectives on quality of care. Using epilepsy as an exemplar, the authors sought to develop an approach to measuring patient-centered quality of care. They conducted six focus groups with adults with epilepsy. Using qualitative methods, the authors initially identified 10 patient-generated quality indicators, 5 of which were subsequently rated, along with literature-based quality indicators, by an expert panel using a modified RAND appropriateness methodology. The authors discuss similarities and differences in aspects of care patients and providers value as essential for good quality. The process presented in this article may serve as a model for incorporating patient perceptions of quality into the future development of quality indicators for chronic diseases.

Original languageEnglish (US)
Pages (from-to)147-166
Number of pages20
JournalMedical Care Research and Review
Issue number2
StatePublished - Apr 2009


  • Chronic disease
  • Epilepsy
  • Patient-centered care
  • Qualitative methods
  • Quality indicators

ASJC Scopus subject areas

  • Health Policy


Dive into the research topics of 'Improving methods for measuring quality of care: A patient-centered approach in chronic disease'. Together they form a unique fingerprint.

Cite this