Improving learning about familial risks using a multicomponent approach: the GRACE program

Nedal Arar, Elizabeth Delgado, Shuko Lee, Hanna E. Abboud

Research output: Contribution to journalArticle

4 Scopus citations

Abstract

Aim: To enhance learning (knowledge, attitudes and practices) about the importance of family health history (FHH) information and familial risks. Methods: A pre-post design with one group was employed in this study. Five learning sessions were conducted with a community-based sample (n = 75) recruited from five counties in Texas, USA. Each learning session included: a short online video; enactive instructions on how to use the online Surgeon General FHH tool; and a presentation on how to assess familial risks. Participants completed the pre-post knowledge, attitudes and practices questionnaires and the study's satisfaction survey, and participated in a short focus group interview. Results: Participants' average age was 48.1 ± 13.3 years. Over half of the participants (79%) were female, and 55% described themselves as non-Hispanic White. Our findings showed significant changes (p < 0.05) in participants' specific knowledge about factors that affect their familial risks. Similarly, significant changes (p < 0.05) in participants' attitudes toward familial risks assessment for common disease complications and confidence in controlling these risks have been documented. Participants' reported a high level of satisfaction in using online FHH tools, yet no significant change (p > 0.05) was detected in their reported practices regarding sharing FHH information with their providers or relatives. Focus group interviews revealed that participants were uncertain about providers' or relatives' reactions to sharing FHH information. Conclusion: Using different learning styles may have a significant impact on improving knowledge and attitudes about familial risks.

Original languageEnglish (US)
Pages (from-to)35-44
Number of pages10
JournalPersonalized Medicine
Volume10
Issue number1
DOIs
StatePublished - Jan 1 2013

Keywords

  • familial risks assessment
  • family health history tool
  • genomics
  • learning
  • online Surgeon General

ASJC Scopus subject areas

  • Molecular Medicine
  • Pharmacology

Fingerprint Dive into the research topics of 'Improving learning about familial risks using a multicomponent approach: the GRACE program'. Together they form a unique fingerprint.

  • Cite this