Health Care Transition in Adolescents and Young Adults With Chronic Kidney Disease: Focus on the Individual and Family Support Systems

Cozumel S. Pruette, Daniel Ranch, Weiwen Vivian Shih, Maria Diaz Gonzalez Ferris

Research output: Contribution to journalReview articlepeer-review

Abstract

Health care transition (HCT) from pediatric to adult-focused services is a longitudinal process driven by the collaboration and interactions of adolescent/young adult patients, their families, providers, health care agencies, and environment. Health care providers in both pediatric and adult-focused settings must collaborate, as patients' health self-management skills are acquired in the mid-20s, after they have transferred to adult-focused care. Our manuscript discusses the individual and family support systems as they relate to adolescents and young adults with chronic or end-stage kidney disease. In the individual domain, we discuss demographic/socioeconomic characteristics, disease complexity/course, cognitive capabilities, and self-management/self-advocacy. In the family domain, we discuss family composition/culture factors, family function, parenting style, and family unit factors. We provide a section dedicated to patients with cognitive and developmental disability. Furthermore, we discuss barriers for HCT preparation and offer solutions as well as activities for HCT preparation.

Original languageEnglish (US)
Pages (from-to)318-326
Number of pages9
JournalAdvances in Chronic Kidney Disease
Volume29
Issue number3
DOIs
StatePublished - May 2022

Keywords

  • Adolescent
  • Chronic kidney disease
  • Cognitive or developmental disability
  • Health care transition
  • Self-management

ASJC Scopus subject areas

  • Nephrology

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