Evolution of the caregiving experience in the initial 2 years following stroke

Carole L. White, Nancy Mayo, James A. Hanley, Sharon Wood-Dauphinee

Research output: Contribution to journalArticlepeer-review

57 Scopus citations


Relationships between stroke survivor and family caregiver factors and the caregiver's health-related quality of life (HRQL) and overall quality of life (QoL) were examined in 97 dyads during the first and second years after stroke. Compared to age- and sex-matched population norms, caregivers scored significantly lower on the mental subscales of HRQL, and differences were greater for women than for men. Caregiver characteristics (older age, less burden, and fewer physical symptoms) were associated with better HRQL (mental summary scale) in the first year, with similar findings in the second year. Moderate stroke survivor physical impairment and caregiver characteristics (younger age and better HRQL) were associated with better QoL in the first year. During the second year poorer caregiver physical and mental health and caring for a stroke survivor with communication difficulties were associated with diminished QoL.

Original languageEnglish (US)
Pages (from-to)177-189
Number of pages13
JournalResearch in Nursing and Health
Issue number3
StatePublished - Jun 1 2003
Externally publishedYes


  • Family caregiver
  • Health-related quality of life
  • Quality of life
  • Stroke

ASJC Scopus subject areas

  • Nursing(all)


Dive into the research topics of 'Evolution of the caregiving experience in the initial 2 years following stroke'. Together they form a unique fingerprint.

Cite this