Donor human milk bank data collection in North America: An assessment of current status and future needs

Elizabeth A. Brownell, Mary M. Lussier, Victor C. Herson, James I. Hagadorn, Kathleen A. Marinelli

Research output: Contribution to journalArticle

14 Scopus citations

Abstract

Background: The Human Milk Banking Association of North America (HMBANA) is a nonprofit association that standardizes and facilitates the establishment and operation of donor human milk (DHM) banks in North America. Each HMBANA milk bank in the network collects data on the DHM it receives and distributes, but a centralized data repository does not yet exist. In 2010, the Food and Drug Administration recognized the need to collect and disseminate systematic, standardized DHM bank data and suggested that HMBANA develop a DHM data repository. Objectives: This study aimed to describe data currently collected by HMBANA DHM banks and evaluate feasibility and interest in participating in a centralized data repository. Methods: We conducted phone interviews with individuals in different HMBANA milk banks and summarized descriptive statistics. Results: Eight of 13 (61.5%) sites consented to participate. All respondents collected donor demographics, and half (50%; n = 4) rescreened donors after 6 months of continued donation. The definition of preterm milk varied between DHM banks (≤ 32 to ≤ 40 weeks). The specific computer program used to house the data also differed. Half (50%; n = 4) indicated that they would consider participation in a centralized repository. Conclusions: Without standardized data across all HMBANA sites, the creation of a centralized data repository is not yet feasible. Lack of standardization and transparency may deter implementation of donor milk programs in the neonatal intensive care unit setting and hinder benchmarking, research, and quality improvement initiatives.

Original languageEnglish (US)
Pages (from-to)47-53
Number of pages7
JournalJournal of Human Lactation
Volume30
Issue number1
DOIs
StatePublished - Jan 14 2014
Externally publishedYes

Keywords

  • breastfeeding
  • human milk
  • Human Milk Banking Association of North America
  • milk bank
  • public health surveillance

ASJC Scopus subject areas

  • Obstetrics and Gynecology

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