Dementia Caregiver Experiences: Insights From a Telephone-Based Support Program

Glory H. Thai, Sheran Rivette, Jo Ann Sharman, Fayron Epps, Sara Masoud

Research output: Contribution to journalArticlepeer-review

Abstract

Dementia caregivers face daunting challenges as both the oldest subpopulation of those providing unpaid care and the most at risk of adverse health outcomes as a result of their role, including depression, anxiety, and increased mortality. To better understand the experiences and needs of dementia caregivers, a qualitative content analysis was conducted of secondary data extracted from call logs (N = 569) recorded by a provider-initiated, telephone-based support program. Experiences identified from the call logs were coded, categorized, and ranked to determine the most prevalent dementia caregiving-related experiences. Features of the program, particularly the semi-structured call format and directionality of calls, helped to uniquely capture common experiences of family caregivers and their day-to-day concerns. Findings from this analysis reflect the high prevalence of caregiver mental and emotional health-related concerns. This analysis supports the development of interventions that align with the experiences of dementia caregivers.

Original languageEnglish (US)
JournalJournal of Applied Gerontology
DOIs
StateAccepted/In press - 2024

Keywords

  • caregiving
  • dementia
  • geriatrics
  • home- and community-based care and services
  • long-term services and supports

ASJC Scopus subject areas

  • Gerontology
  • Geriatrics and Gerontology

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