TY - JOUR
T1 - Common data elements for epilepsy mobile health systems
AU - Goldenholz, Daniel M.
AU - Moss, Robert
AU - Jost, David A.
AU - Crone, Nathan E.
AU - Krauss, Gregory
AU - Picard, Rosalind
AU - Caborni, Chiara
AU - Cavazos, Jose E.
AU - Hixson, John
AU - Loddenkemper, Tobias
AU - Salazar, Tracy Dixon
AU - Lubbers, Laura
AU - Harte-Hargrove, Lauren C.
AU - Whittemore, Vicky
AU - Duun-Henriksen, Jonas
AU - Dolan, Eric
AU - Kasturia, Nitish
AU - Oberemk, Mark
AU - Cook, Mark J.
AU - Lehmkuhle, Mark
AU - Sperling, Michael R.
AU - Shafer, Patricia O.
N1 - Funding Information:
This project was made possible in part by the International Seizure Diary Consortium (https://sites.google.com/site/isdc home/). We would also like to acknowledge the efforts and suggestions of our colleagues Dr. William Theodore at National Institutes of Health, Dr. Sheryl Haut at Montefiore Medical Center, Dr. Robert Fisher at Stanford, Nick Hasu-lak and Dr. Martha Morrell from Neuropace, Matteo Lai and Daniel Bender from Empatica, Anoo Nathan from Smart Monitor, Mike Girouard from Brain Sentinel, and Dr. Brandy Fureman from the Epilepsy Foundation.
Funding Information:
This project was made possible in part by the International Seizure Diary Consortium (https://sites.google.com/site/isdchome/). We would also like to acknowledge the efforts and suggestions of our colleagues Dr. William Theodore at National Institutes of Health, Dr. Sheryl Haut at Montefiore Medical Center, Dr. Robert Fisher at Stanford, Nick Hasulak and Dr. Martha Morrell from Neuropace, Matteo Lai and Daniel Bender from Empatica, Anoo Nathan from Smart Monitor, Mike Girouard from Brain Sentinel, and Dr. Brandy Fureman from the Epilepsy Foundation.
Publisher Copyright:
Wiley Periodicals, Inc. © 2018 International League Against Epilepsy
PY - 2018/5
Y1 - 2018/5
N2 - Objective: Common data elements (CDEs) are currently unavailable for mobile health (mHealth) in epilepsy devices and related applications. As a result, despite expansive growth of new digital services for people with epilepsy, information collected is often not interoperable or directly comparable. We aim to correct this problem through development of industry-wide standards for mHealth epilepsy data. Methods: Using a group of stakeholders from industry, academia, and patient advocacy organizations, we offer a consensus statement for the elements that may facilitate communication among different systems. Results: A consensus statement is presented for epilepsy mHealth CDEs. Significance: Although it is not exclusive, we believe that the use of a minimal common information denominator, specifically these CDEs, will promote innovation, accelerate scientific discovery, and enhance clinical usage across applications and devices in the epilepsy mHealth space. As a consequence, people with epilepsy will have greater flexibility and ultimately more powerful tools to improve their lives.
AB - Objective: Common data elements (CDEs) are currently unavailable for mobile health (mHealth) in epilepsy devices and related applications. As a result, despite expansive growth of new digital services for people with epilepsy, information collected is often not interoperable or directly comparable. We aim to correct this problem through development of industry-wide standards for mHealth epilepsy data. Methods: Using a group of stakeholders from industry, academia, and patient advocacy organizations, we offer a consensus statement for the elements that may facilitate communication among different systems. Results: A consensus statement is presented for epilepsy mHealth CDEs. Significance: Although it is not exclusive, we believe that the use of a minimal common information denominator, specifically these CDEs, will promote innovation, accelerate scientific discovery, and enhance clinical usage across applications and devices in the epilepsy mHealth space. As a consequence, people with epilepsy will have greater flexibility and ultimately more powerful tools to improve their lives.
KW - common data elements
KW - devices
KW - epilepsy
KW - mHealth
KW - seizure diary
KW - standards
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U2 - 10.1111/epi.14066
DO - 10.1111/epi.14066
M3 - Article
C2 - 29604050
AN - SCOPUS:85044636685
SN - 0013-9580
VL - 59
SP - 1020
EP - 1026
JO - Epilepsia
JF - Epilepsia
IS - 5
ER -