Abstract
Objective: Common data elements (CDEs) are currently unavailable for mobile health (mHealth) in epilepsy devices and related applications. As a result, despite expansive growth of new digital services for people with epilepsy, information collected is often not interoperable or directly comparable. We aim to correct this problem through development of industry-wide standards for mHealth epilepsy data. Methods: Using a group of stakeholders from industry, academia, and patient advocacy organizations, we offer a consensus statement for the elements that may facilitate communication among different systems. Results: A consensus statement is presented for epilepsy mHealth CDEs. Significance: Although it is not exclusive, we believe that the use of a minimal common information denominator, specifically these CDEs, will promote innovation, accelerate scientific discovery, and enhance clinical usage across applications and devices in the epilepsy mHealth space. As a consequence, people with epilepsy will have greater flexibility and ultimately more powerful tools to improve their lives.
| Original language | English (US) |
|---|---|
| Journal | Epilepsia |
| DOIs | |
| State | Accepted/In press - Jan 1 2018 |
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Keywords
- Common data elements
- Devices
- Epilepsy
- MHealth
- Seizure diary
- Standards
ASJC Scopus subject areas
- Neurology
- Clinical Neurology
Cite this
Common data elements for epilepsy mobile health systems. / Goldenholz, Daniel M.; Moss, Robert; Jost, David A.; Crone, Nathan E.; Krauss, Gregory; Picard, Rosalind; Caborni, Chiara; Cavazos, Jose E; Hixson, John; Loddenkemper, Tobias; Salazar, Tracy Dixon; Lubbers, Laura; Harte-Hargrove, Lauren C.; Whittemore, Vicky; Duun-Henriksen, Jonas; Dolan, Eric; Kasturia, Nitish; Oberemk, Mark; Cook, Mark J.; Lehmkuhle, Mark; Sperling, Michael R.; Shafer, Patricia O.
In: Epilepsia, 01.01.2018.Research output: Contribution to journal › Article
}
TY - JOUR
T1 - Common data elements for epilepsy mobile health systems
AU - Goldenholz, Daniel M.
AU - Moss, Robert
AU - Jost, David A.
AU - Crone, Nathan E.
AU - Krauss, Gregory
AU - Picard, Rosalind
AU - Caborni, Chiara
AU - Cavazos, Jose E
AU - Hixson, John
AU - Loddenkemper, Tobias
AU - Salazar, Tracy Dixon
AU - Lubbers, Laura
AU - Harte-Hargrove, Lauren C.
AU - Whittemore, Vicky
AU - Duun-Henriksen, Jonas
AU - Dolan, Eric
AU - Kasturia, Nitish
AU - Oberemk, Mark
AU - Cook, Mark J.
AU - Lehmkuhle, Mark
AU - Sperling, Michael R.
AU - Shafer, Patricia O.
PY - 2018/1/1
Y1 - 2018/1/1
N2 - Objective: Common data elements (CDEs) are currently unavailable for mobile health (mHealth) in epilepsy devices and related applications. As a result, despite expansive growth of new digital services for people with epilepsy, information collected is often not interoperable or directly comparable. We aim to correct this problem through development of industry-wide standards for mHealth epilepsy data. Methods: Using a group of stakeholders from industry, academia, and patient advocacy organizations, we offer a consensus statement for the elements that may facilitate communication among different systems. Results: A consensus statement is presented for epilepsy mHealth CDEs. Significance: Although it is not exclusive, we believe that the use of a minimal common information denominator, specifically these CDEs, will promote innovation, accelerate scientific discovery, and enhance clinical usage across applications and devices in the epilepsy mHealth space. As a consequence, people with epilepsy will have greater flexibility and ultimately more powerful tools to improve their lives.
AB - Objective: Common data elements (CDEs) are currently unavailable for mobile health (mHealth) in epilepsy devices and related applications. As a result, despite expansive growth of new digital services for people with epilepsy, information collected is often not interoperable or directly comparable. We aim to correct this problem through development of industry-wide standards for mHealth epilepsy data. Methods: Using a group of stakeholders from industry, academia, and patient advocacy organizations, we offer a consensus statement for the elements that may facilitate communication among different systems. Results: A consensus statement is presented for epilepsy mHealth CDEs. Significance: Although it is not exclusive, we believe that the use of a minimal common information denominator, specifically these CDEs, will promote innovation, accelerate scientific discovery, and enhance clinical usage across applications and devices in the epilepsy mHealth space. As a consequence, people with epilepsy will have greater flexibility and ultimately more powerful tools to improve their lives.
KW - Common data elements
KW - Devices
KW - Epilepsy
KW - MHealth
KW - Seizure diary
KW - Standards
UR - http://www.scopus.com/inward/record.url?scp=85044636685&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85044636685&partnerID=8YFLogxK
U2 - 10.1111/epi.14066
DO - 10.1111/epi.14066
M3 - Article
JO - Epilepsia
JF - Epilepsia
SN - 0013-9580
ER -