Characterizing Dementia Caregivers’ Information Exchange on Social Media: Exploring an Expert-Machine Co-development Process

Zhendong Wang, Ning Zou, Bo Xie, Zhimeng Luo, Daqing He, Robin C. Hilsabeck, Alyssa Aguirre

Research output: Chapter in Book/Report/Conference proceedingConference contribution

7 Scopus citations

Abstract

Social media platforms have introduced new opportunities for supporting family caregivers of persons with Alzheimer’s disease and related dementias (ADRD). Existing methods for exploring online information seeking and sharing (i.e., information exchange) involve examining online posts via manual analysis by human experts or fully automated data-driven exploration through text classification. Both methods have limitations. In this paper, we propose an innovative expert–machine co-development (EMC) process that enables rich interactions and co-learning between human experts and automatic algorithms. By applying the EMC in analyzing ADRD caregivers’ online behaviors, we illustrate steps required by the EMC, and demonstrate its effectiveness in enhancing human experts’ representations of ADRD caregivers’ online information exchange and developing more accurate automatic classification models for ADRD caregivers’ information exchange.

Original languageEnglish (US)
Title of host publicationDiversity, Divergence, Dialogue - 16th International Conference, iConference 2021, Proceedings
EditorsKatharina Toeppe, Hui Yan, Samuel Kai Chu
PublisherSpringer Science and Business Media Deutschland GmbH
Pages47-67
Number of pages21
ISBN (Print)9783030712914
DOIs
StatePublished - 2021
Externally publishedYes
Event16th International Conference on Diversity, Divergence, Dialogue, iConference 2021 - Beijing, China
Duration: Mar 17 2021Mar 31 2021

Publication series

NameLecture Notes in Computer Science (including subseries Lecture Notes in Artificial Intelligence and Lecture Notes in Bioinformatics)
Volume12645 LNCS
ISSN (Print)0302-9743
ISSN (Electronic)1611-3349

Conference

Conference16th International Conference on Diversity, Divergence, Dialogue, iConference 2021
Country/TerritoryChina
CityBeijing
Period3/17/213/31/21

Keywords

  • Alzheimer’s disease and related dementias (ADRD) caregiving
  • Expert-Machine Co-development (EMC)
  • Interactive learning
  • Online information exchange
  • Social media analysis

ASJC Scopus subject areas

  • Theoretical Computer Science
  • General Computer Science

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