Bioethics for Neonatal Cardiac Care

Vanessa N. Madrigal; Dalia M. Feltman; Steven R. Leuthner; Roxanne Kirsch; Rekha Hamilton; Deborah Dokken; Jennifer Needle; Renee Boss; Efrat Lelkes; Brian Carter; Eduardo MacIas; Shazia Bhombal

doi:10.1542/peds.2022-056415N

Bioethics for Neonatal Cardiac Care

Vanessa N. Madrigal, Dalia M. Feltman, Steven R. Leuthner, Roxanne Kirsch, Rekha Hamilton, Deborah Dokken, Jennifer Needle, Renee Boss, Efrat Lelkes, Brian Carter, Eduardo MacIas, Shazia Bhombal

Research output: Contribution to journal › Article › peer-review

6 Scopus citations

Abstract

BACKGROUND: Clinicians caring for neonates with congenital heart disease encounter challenges with ethical implications in daily practice and must have some basic fluency in ethical principles and practical applications. METHODS: Good ethical practice begins with a thorough understanding of the details and narrative of each individual case, examination via classic principles of bioethics, and further framing of that translation into practice. RESULTS: We explore some of these issues and expand awareness through the lens of a case presentation beginning with fetal considerations through end-of-life discussions. CONCLUSIONS: We include specific sections that bring attention to shared decision-making, research ethics, and outcomes reporting. We review empirical evidence and highlight recommendations.

Original language	English (US)
Article number	e2022056415N
Journal	Pediatrics
Volume	150
DOIs	https://doi.org/10.1542/peds.2022-056415N
State	Published - Nov 1 2022
Externally published	Yes

ASJC Scopus subject areas

Pediatrics, Perinatology, and Child Health

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10.1542/peds.2022-056415N

Cite this

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title = "Bioethics for Neonatal Cardiac Care",

abstract = "BACKGROUND: Clinicians caring for neonates with congenital heart disease encounter challenges with ethical implications in daily practice and must have some basic fluency in ethical principles and practical applications. METHODS: Good ethical practice begins with a thorough understanding of the details and narrative of each individual case, examination via classic principles of bioethics, and further framing of that translation into practice. RESULTS: We explore some of these issues and expand awareness through the lens of a case presentation beginning with fetal considerations through end-of-life discussions. CONCLUSIONS: We include specific sections that bring attention to shared decision-making, research ethics, and outcomes reporting. We review empirical evidence and highlight recommendations.",

author = "Madrigal, {Vanessa N.} and Feltman, {Dalia M.} and Leuthner, {Steven R.} and Roxanne Kirsch and Rekha Hamilton and Deborah Dokken and Jennifer Needle and Renee Boss and Efrat Lelkes and Brian Carter and Eduardo MacIas and Shazia Bhombal",

note = "Publisher Copyright: Copyright {\textcopyright} 2022 by the American Academy of Pediatrics.",

year = "2022",

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doi = "10.1542/peds.2022-056415N",

language = "English (US)",

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TY - JOUR

T1 - Bioethics for Neonatal Cardiac Care

AU - Madrigal, Vanessa N.

AU - Feltman, Dalia M.

AU - Leuthner, Steven R.

AU - Kirsch, Roxanne

AU - Hamilton, Rekha

AU - Dokken, Deborah

AU - Needle, Jennifer

AU - Boss, Renee

AU - Lelkes, Efrat

AU - Carter, Brian

AU - MacIas, Eduardo

AU - Bhombal, Shazia

PY - 2022/11/1

Y1 - 2022/11/1

N2 - BACKGROUND: Clinicians caring for neonates with congenital heart disease encounter challenges with ethical implications in daily practice and must have some basic fluency in ethical principles and practical applications. METHODS: Good ethical practice begins with a thorough understanding of the details and narrative of each individual case, examination via classic principles of bioethics, and further framing of that translation into practice. RESULTS: We explore some of these issues and expand awareness through the lens of a case presentation beginning with fetal considerations through end-of-life discussions. CONCLUSIONS: We include specific sections that bring attention to shared decision-making, research ethics, and outcomes reporting. We review empirical evidence and highlight recommendations.

AB - BACKGROUND: Clinicians caring for neonates with congenital heart disease encounter challenges with ethical implications in daily practice and must have some basic fluency in ethical principles and practical applications. METHODS: Good ethical practice begins with a thorough understanding of the details and narrative of each individual case, examination via classic principles of bioethics, and further framing of that translation into practice. RESULTS: We explore some of these issues and expand awareness through the lens of a case presentation beginning with fetal considerations through end-of-life discussions. CONCLUSIONS: We include specific sections that bring attention to shared decision-making, research ethics, and outcomes reporting. We review empirical evidence and highlight recommendations.

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Bioethics for Neonatal Cardiac Care

Abstract

ASJC Scopus subject areas

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