African American Adolescents’ Experiences Providing Care for a Family Member with Dementia

This study explores the experiences of African American adolescents aged 14–17 who provide care for family members with Alzheimer’s disease and related dementias (ADRD). The research utilizes a qualitative approach, conducting semi-structured interviews with 10 participants recruited through two ADRD service organizations. Analysis of interview data revealed five key themes: 1) experiencing and recognizing caregiver stress, 2) conflicting roles within the African American family system, 3) knowledge of ADRD behavioral symptoms through direct caregiving experiences, 4) seeking supportive groups instead of traditional support groups, and finally 5) the positive impact of caregiving. The results of this study show the variety of emotions experienced by these adolescents, including relief, joy, sadness, and stress. Results also highlight the cultural expectations within the families of each caregiver. This research addresses a vital gap in the literature and provides valuable insight into the unique needs and experiences of African American adolescent caregivers.