TY - JOUR
T1 - A Collaborative Model for Research
T2 - Neurodevelopmental Effects of HIV-1 in Children and Adolescents with Hemophilia as an Example
AU - Stehbens, James A.
AU - Loveland, Katherine A.
AU - Bordeaux, Janice D.
AU - Contant, Charles
AU - Schiller, Marilyn
AU - Scott, Anthony
AU - Moylan, Patricia M.
AU - Maeder, Margaret
PY - 1997/1/1
Y1 - 1997/1/1
N2 - In this article we describe a model developed for a longitudinal neuropsychological investigation of pediatric hemophilia patients. The model could be applied to study the neurobehavioral outcomes of other chronic childhood disorders to allow for comparison among illness and disease groups. The primary psychology research questions in this study concern the effects of hemophilia and HIV-1 - the AIDS virus - on the development of children with hemophilia in 9 areas of psychological functioning. We present data regarding type and severity of hemophilia, socioeconomic status, developmental and educational history, and immune functioning at enrollment We briefly review baseline neuropsychological data in relation to the demographic, educational, and medical history data, and we discuss the advantages and disadvantages of multisite collaborative longitudinal studies as well. Finally, we discuss the potential for this study to advance knowledge regarding the effects of both hemophilia and HIV-1 on the developing child.
AB - In this article we describe a model developed for a longitudinal neuropsychological investigation of pediatric hemophilia patients. The model could be applied to study the neurobehavioral outcomes of other chronic childhood disorders to allow for comparison among illness and disease groups. The primary psychology research questions in this study concern the effects of hemophilia and HIV-1 - the AIDS virus - on the development of children with hemophilia in 9 areas of psychological functioning. We present data regarding type and severity of hemophilia, socioeconomic status, developmental and educational history, and immune functioning at enrollment We briefly review baseline neuropsychological data in relation to the demographic, educational, and medical history data, and we discuss the advantages and disadvantages of multisite collaborative longitudinal studies as well. Finally, we discuss the potential for this study to advance knowledge regarding the effects of both hemophilia and HIV-1 on the developing child.
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U2 - 10.1207/s15326888chc2602_5
DO - 10.1207/s15326888chc2602_5
M3 - Article
AN - SCOPUS:0000410289
VL - 26
SP - 115
EP - 135
JO - Children's Health Care
JF - Children's Health Care
SN - 0273-9615
IS - 2
ER -